Came across details of another mesothelioma survivor today, there are so few around the world feel as though I know them all personally .
The Mesothelioma Cancer Alliance is excited to welcome mesothelioma survivor, Heather Von St. James to our outreach and advocacy efforts. Heather was diagnosed with mesothelioma in 2005 after she developed fatigue, anemia, and shortness of breath due to fluid effusion in her chest. Heather was diagnosed just three and a half months after the birth of her daughter, Lily.
Typical mesothelioma prognosis is poor, with most patients surviving only twelve to eighteen months beyond diagnosis. Heather’s choices included forgoing treatment and living perhaps fifteen months, pursuing traditional chemotherapy and radiation for a slightly extended prognosis, or pursuing one of the less conventional surgical treatment methods.
Upon evaluating her options, Heather elected to undergo a radical surgical procedure called extrapleural pneumonectomy, performed by esteemed thoracic surgeon Dr. David Sugarbaker through the International Mesothelioma Program at Brigham and Women’s Hospital in Boston. Heather then received adjuvant chemotherapy and radiation and was eventually declared cancer free.
More than 5 years later, Heather now serves as a beacon of hope and courage for all those diagnosed with mesothelioma.
Along with all the meso issues, also elected to take voluntary redundancy. made the decision back in February but taken a while to work through notice period – but that’s it my last day has now arrived, out last night for a few beers, so feeling slightly jaded today.
As reality kicks in , feeling very wobbly , hopefully new part time job in September will work out , still if not , sure something else will come along to keep the wolf from the door.
Now have just under two full months to concentrate on spending time together, the idea being to enjoy some nice times as he starts to recover from effects of the chemotherapy. At least we didn’t have the trip into London today to see Jeremy Steele, or the worry about the next treatment on Tuesday.
At the moment, he is very breathless , really sore eyes and achy all over, pretty typical symptoms for chemo there then. Emotionally he is very down, keeping my fingers firmly crossed that by next weekend, additional week of recovery will start to deliver some benefits – doesn’t have to be a lot but he really does need something to hold on too, some upturn in his health , however small.
Anxiety is also kicking in , still find getting a good nights sleep unobtainable, the levemopromazine helps with this , by calming him down. He is just taking a quarter tablet , but no longer really focussed on the anti nausea effect, more the slight sedative effect. I do wonder , given previous experience, whether this is also depressing his mood.
The crappy weather doesn’t help- where’s the sunshine now I am off work ?
Hopefully will be a good British Grand Prix for him to watch this weekend, followed by some decent weather next week , which he can start to enjoy. I have a cookery course next week- so expect tales of beheading fish and burning cakes .
The Olympic tickets have been purchased – so beach volleyball in 2012 here we come – that has to be worth fighting for .