A mesothelioma journal

In October 2010,my 47 year old partner was diagnosed with mesothelioma and our lives were changed for ever. This is a journal of our attempt to live as a couple together  with this terrible disease. There is no cure but some people do survive far longer than expected, years rather than months.

He elected for the trimodal treatment option, involving pleurectomy decortication, radiation and 6 sessions of chemotherapy with ailmta/cisplatin.

The surgery was tough , the radiation tiring and the chemo needed everything he had to give, it has brought us very close as a couple  and every good day has been a champagne day. Three scans furthur on, a bout of pneumonia and what feels like two steps back for one forward at times, we try our best to live within the three month scan windows and make the most of every moment we have together.

 

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