Monthly Archives: June 2011

Chemo round 6 – day 9 return of breathlessness

Into the second week of the chemo, when infection risk starts to increase as blood count starts to drop. As well as the white blood count dropping so do the red blood cells, which accounts for the breathlessness this week, generally this starts to improve in week three. The dizziness continues , when he lies down the room starts spinning, like the aftereffects of those really bad student hangovers , only without the alcohol. It tends to make him very irritable as his energy levels drop right down , having been so fit previously , psychologically this is always really difficult.

Blood count at last test was as follows

RBC – 11.4 ( this was lowest result to date)

WBC – 2.6

N phils – 1.9

This is also the week of the nose bleeds, had a really bad one mid week last time when it took around 30 mins to stop completely . Have increased  iron content of diet with additional watercress in salads ( broccoli has been off the menu for months ).

Mentally finding it tough now, the phrase ” terminal cancer ” keeps haunting us , as we realise this last six months , however hard , doesn’t mean anything is over , indeed may be nothing has even been achieved. IF it has suppressed the tumour , there’s no knowing for how long. Then again noone has any guarantees in life, cancer doesn’t make you special.

To paraphrase Churchill,  chemo round 6 isn’t the beginning of the end but it is the end of the beginning.

 

Day 6 and a day at The Test River

Despite a difficult day , have at least managed to get out and enjoy something of the good weather. Truly gorgeous June day so we drove put to the river Test where we could walk for a while along its banks and through the woods. Unfortunatly as most of the Test seems to be privately owned for its fishing rights you cant walk along its banks for far, but it worked out to be enough for us

We finished off with a drink at a local pub , overlooking the river and he felt well enough for us to stay and have something to eat, which was a major step up. Hopefully will continue to feel OK, stopping the metaclopromide today so will now just be on the levemopromazine , which worked well for him last time, the only extra side effect this time appears to be the dizziness, wondered if it was due to a slightly reduced red blood cell count, it is the lowest it has been since the start of treatment. Apparently still within the normal range but at its lower level, so they think unlikely to be causing any symptoms.

Will find out in the next couple of days if I managed to get those Olympic tickets, the equivalent of two fingers up to meso .

Round 6 – day 5 – return of the pink toes

At least the weather has started to improve with a beautiful June evening. Steroids have now ended so as usual today is a bit more nauseous, coupled with the usual lethargy and fidgety legs. Hopefully the fidgets will start to reduce as the steroids come out of his system, although have found the metaclopromide also causes restless legs. Thinks he feels more sick today because of resorting to a sleeping tablet last night- think he is the only one on chemo who feels exhausted but can’t sleep.

Has the return of one of the more unusual side effects today, haven’t seen it written anywhere so don’t know if it the chemo, steroids or anti sickness, but he gets really hot pink feet. They look like porky pigs!!

The good news is that at last the drugs are reducing, so no more streroids, the meta will stop in two days, then he will hopefully start to feel stronger in a couple of weeks and we can start to think about nice things to do, rather than just getting through each day.

Chemotherapy round 6 – day 4 and a thank you to M&S

Day 4 underway and all the usual joys of the first week have returned, constantly moving legs and poor sleep from the steroids, coupled with lethargy and sickness of the chemo. He did wonder if everything was much worse this time, but think it is about the same, just luckily you forget in between treatments. Just as well, or you’d never go back.

This week is always really hard to find things to eat, M&S have leapt to the rescue with their cream of chicken soup. He has just managed a large bowl of this and after a short time watching the tennis , has headed back to bed.

With only one week left at work ( with one last paycheck) am now just tidying up my inbox , making sure everyone can find everything when I leave and generally dossing about . Did get up early to try and get some Olympic tickets – he hates me booking anything in the future , but it’s my gesture of defiance. Up yours meso, we will go to the Olympics together !!

Round 6 – day 2 the onset of dizziness and extreme lethargy

Continuing his campaign to ensure full value from his treatment and not miss  out on any possible side effects, round 6 has delivered us the bonus ball of dizziness.  So although nausea under control, as well as the extreme tiredness , he now feels very dizzy.

He finds this very scary , so has spent most of the day in bed, monitoring his temperature closely as this is a new symptom but at the moment seems to be within normal range. He does think this is the worst he has felt because the lethargy is so extreme, yet whilst he can lie down and doze , he doesn’t seem able to get any proper sleep or relief, so its a form of torture. We were warned the impact is cumulative , so no doubt this is why the exhaustion is so great this time. Plus of course he is now back on the steroids which we know hypes you up and can cause sleep problems – its as though the different drugs wage their own internal battle.

We were lucky with round 5 , when he had a relatively easy three weeks.

Top tip for anyone on chemo , make the most of good days as they appear to strike at random. The good news is however unlikely it appears at times, you DO get some good days

Now although not nauseous , finding the energy to eat is the new challenge. I am currently watching the Andy Murray match whilst waiting for inspiration on what to cook tonight.

Chemotherapy Round 6 – Day 1 and Christchurch Greyfriars garden

Well it was a bit of a trial but that’s round 6 completed, we knew bloods were borderline and they would repeat today , but as usual system had an extra test. The chemotherapy takes around 7 – 8 hours to complete , so he is literally first in as they are opening and last out as they are closing.

Have had to have bloods repeated a couple of times over this treatment , the nurse has always started him off on the 2 hour initial hydration whilst we wait the  90 minutes for the blood results to come up. Not today !! No today we get a head nurse that says we are to wait until after the results before hydration can start .  After pointing out that if we did this , they wouldn’t have time to complete the treatment before they finished for the evening , was told in that case we would have to reschedule !!!

The stress of tube journey , night before when he doesn’t sleep , trauma of the whole day was NOT going to be repeated . After a relatively forceful discussion ,managed to get  the hydration  started as usual , then later got confirmation  bloods OK, so all worked out in the end .

Very , very tired today  as he had such a bad nights sleep last night, as well as usual anxiety, one of my cats found a ping – pong ball, combined with the laminate flooring , my how we laughed at 4.00 am this morning !!

Back to the usual routine now of steroids, anti sickness pills and trying to make sure he eats. Pizza and chips tonight , so off to a good start.

As will hopefully be quite some time before our next visit to Barts, took a few pictures of two gardens we walk past on our way. They are small city gardens, having watch them change and blossom over the last few months since the first treatment back in February, we always take a second to look at them and draw breath on our walk back to the tube.

One of them is the garden of Christchurch Greyfriars , now a ruin. The tower and spire, adorned with urns is, according to Pevsner, “a square version of St Mary-le-Bow”. The gutted church, the third on this site, was never rebuilt after it was destroyed in the Second World War. Instead, its nave was made into a rose garden with paths where the aisles would have been and pergolas where columns once stood. The hedged areas mark where the congregation would have sat. The steeple was restored by Lord Mottistone in 1960 and the tower was converted into an exclusive private residence in 2001.

Though the original buildings were destroyed in the Great Fire of London in 1666, the church and the school were both rebuilt in the 1670s. Wren was the architect of both. It is surprising then, given Wren’s standing in the City, that the school buildings were demolished in the early 20th century. to make way for the General Post Office, which has now itself been demolished.

Three queens are buried here: Margaret, the second wife of Edward I; Isabella, the wife of Edward II; and Eleanor, the wife of Henry III, though only Eleanor’s heart is buried at Christchurch, the remainder of her body being interred in Aylesbury. Along with these, lies another notable woman: Elizabeth Barton, the Holy Maid of Kent. She was hanged at Tyburn for preaching against Henry VIII’s marriage to Anne Boleyn.

Isabella,  along with her lover Mortimer, was deeply involved in the death of her husband. She is said to have been buried along with the heart of the dead husband she betrayed. Unable to find rest eternal, her arms rise from the ground now, flailing and clutching at the air, accompanied by the sound of a gruesome and unholy rattling of chains.

Luckily she has never been about whilst I’ve been walking past , so have just been able to enjoy the garden instead

Why, why , why…..

I hate this disease, it’s treatment, what it has done to our lives and how it is starting to eat away at him a little bit more every day. How come you can have a good day on Friday and then have such a terrible day today- the chemotherapy truck has well and truly hit him , has hardly been out of bed all day.

Aches all over, no energy , he lies there with a colour that travels the full spectrum of grey , looking so frail, so worn down by everything. When you are so conscious of having limited time being this miserable isn’t fair!!  Also makes you feel so useless , because there is nothing that can be done to help.

Underlying everything else is the thought that all these aches aren’t chemo, but the original mesothelioma rampaging away , shrugging off the treatment likesome sort of baddy in a super hero comic !!

Rant over – tomorrow is another day.

 

A day of two halves

After a good day yesterday , the chemo hit back today. Started off not too badly although muscle soreness was back, even managed to get to our local theatre to see Yes Prime Minister, driving there through torrential rain .

Coming back though the pain really started to kick in, in the main around the chest area and top of the diaphragm , no idea why it was so much worse today than for the last few weeks, just when we thought it was getting easier. Got to the extent he was starting to look quite grey – has headed off early to bed, with luck it will be easier tomorrow.

A visit to Barts- PET & CT scans

PET scan image

Image via Wikipedia

Day dawns on our pre chemo check up appointment, due 1.30pm today. Awake early as usual ,always starts to get a bit stressful, you’d think we’d be used to it by now, hospitals are never the best place to be going on your day off.

Going in early to check out bloods, hopefully will be OK, or at least marginal, still another three days to treatment day , which gives them a bit of time to recover. Overall he is quite perky today, put on some dance tunes yesterday and had a dance around the kitchen which got the blood moving ( no prizes for content, Britains got Talent won’t be calling).

Watched Springwatch with the cats last night (their favourite programme), looking forward to making the most of summer as he starts to recover from chemo, now trying not to think about the next scan.

Quick update on the visit , asked about difference between a PET and CT scan, doctor used analogy of the stuffed white tiger that caused 4 helicopters to be scrambled recently , a CT scan would show the shape of the tiger , the PET scan would show you if its heart was beating. Apparently the latter picks up on cells that are using more energy , which show up more brightly , you drink a tagged sugar drink beforehand. As active cancer cells use more energy, they  show up more brightly – the drawback about having one in 6 weeks , is it is still within 6 months of the original surgery so the pleura etc is still healing which means they are also using more energy. making the results difficult to interpret.

Blood results hadn’t come through before we left, so fingers crossed all OK, at least had the benefit today of a really good nurse , who took the bloods with no pain at all – you’d think it was a pretty basic nursing skill , but very few have done this painlessly , most have left bruising and some have been really painful, in overall scheme of terminal cancer it may seem minor but these things do make a difference. Suggest in all this NHS reform that maybe a bit of extra training for nurses on taking blood painlessly might be useful

At this stage , CT scan booked for 29 July , but oncologist is going to check with the surgeon to discuss our case and see if he feels a PET scan is appropriate.

Also mentioned that at last chemo , they didn’t have any prescriptions for us, so he entered everything into system whilst we were there- don’t want any mix ups on Tuesday , bad enough dealing with the Unions and their strike actions on the underground.

Angiogenesis- where foods can help

Continuing to increase my medical knowledge and the feeling we have swallowed a textbook, angiogenesis is one of the new hip happening phrases-

“Angiogenesis” is the body’s process for creating new blood vessels, but cancer cells can interfere with this process and use blood flow to stimulate their own growth. Eating an anti-angiogenesis diet aims to starve cancer by cutting off its blood supply, inhibiting the production of cancer cells. Anti-angiogenesis foods include strawberries, bok choy, broccoli, soybeans (especially fermented soy products such as miso and tempeh), and tomatoes (cooked is better). Green tea, dark chocolate, and various spices such as cinnamon can also decrease cancer risk.

Still yet to see eclairs or ice cream making a late entry, buy guess who will be having broccoli and bok choy ( will have to look up what this is ) followed by strawberries and chocolate this weekend.